The past few days have been a whirlwind of events. It’s overwhelming how things can change in such a short span of time—it’s like you haven’t got time to even think about it. There are a lot of big things happening here at home that I can’t talk about just yet (but I will soon), but there are also some things that I can—one that pertains to a friend and mental illness.
Just a few days ago, I found out that an old friend of mine was starting to display symptoms of a mental illness. I haven’t talked to her myself, but another friend of ours called me in the middle of the night in panic, telling me that something was seriously wrong with our friend already. I resolved to find the contact number of my sister’s psychiatrist (who was pretty good in my opinion… After all, my sister became ok under her care) and pass it on to my friend’s mom—my dad lost it when he accidentally deleted the contact numbers in his mobile phone 😛 My sister was scheduled for a checkup soon anyway, so I thought, what’s a few days right?
But no, I was wrong.
My friend who informed me of the person’s psychological state then told me that she could no longer reach her—she wasn’t answering her phone. After a number of unsuccessful calls, the mom finally told her that “plans changed†and our friend was already in the United States taking a break with her dad. WTF? I’m no expert in foreign affairs, but can somebody actually get a US VISA, process travelling papers, and send a possibly-unstable person alone with no guardian whatsoever on plane trip across the globe in a span of three to five days? Our friend’s family isn’t politically connected, so how did they pull that off?
I honestly don’t buy it, and so do our other friends. If it was a lie… I perfectly understand why her family would do that. As my family found out a few years ago, it’s not easy coping with mental illness here in the Philippines.
Not everybody is open-minded to “accept†the idea of a family member being mentally ill.
It took our family about two to three years before we finally accepted the fact that we needed help with my younger sister. We thought we could do it on our own. And yes, we even thought that something supernatural was at work. We thought that what she had had something to do with her epilepsy—maybe a part of her brain got “busted†during one of her seizures—or that maybe it was some kind of autism that we just had to live with.
My mom, dad and I alternated in “shifts†watching over my sister at night—none of us had decent sleep for about three years. I quit my 9-to-5 job to take care of my sister better, and had my PC in a room where I could hear what she was doing and at the same time did some freelance design work late at night—and not risking the possibility of my sister putting her foot through my monitor during one of her violent tantrums. Any sound would make us jump and be on “restrain mode.†Her violent tantrums happened so often that my parents and I probably developed muscles on our shoulders with all the “exercise†we’ve gotten while restraining her. Heck, I even had my long hair cut short in preparation for these restraining sessions—it’s more painful getting your hair pulled if it’s long, you know 😛
Now when I thought about it, we pretty much had our lives revolve around my sister during those three difficult years. But it wasn’t that bad. It was, after all, one of the major factors that brought us closer together as a family.
We finally decided it was time for us to get help when my sister nearly took my dad’s eye out with her uncut and sharp fingernails (if you tried to cut her nails, you’d probably see yourself with a perfectly straight scratch on your face), almost broke my right wrist, and threw my mom against the wall. Yeah, yeah I know—we should also be chucked in the loony bin for letting things get that far. But you have to understand, it wasn’t that easy.
For three years we had been hoping it wasn’t as bad as it really was. We couldn’t accept the fact that my sister was mentally ill. She wasn’t possessed by demons. She wasn’t going through a phase. She was just mentally ill. Believe me, it’s easier to accept a demon possessing your sister’s body than accepting the fact that she was sick. An exorcism can cure possession—give it a few days or weeks, then it’s gone. But mental sickness isn’t that easy to go away—you could be mentally ill for the rest of your life and be dependent on medication to help you go through life like any other person.
Then, there are also useless psychiatrists who don’t really give a damn if you got well or not. During the first year of my sister’s illness, we tried to get medical help for her. But unfortunately, the psychiatrist we found was so ineffective that she might have actually made my sister worse. And that was when we thought we were better off on our own. Luckily, my sister’s neurologist was able to find and recommend a really good psychiatrist who eventually got her better.
Even the government can’t do anything for you if you’re mentally ill… If you can’t afford treatment and/or confinement, you’d probably end up in the streets wandering naked and covered in grime. My parents and I didn’t want my sister to end up that way, so we worked our asses off to pay for her expensive medical bills—even to the point of losing more sleep or asking help from relatives.
Oh, and don’t forget the society we live in—which sometimes consider mental illness as something to be ashamed of. You don’t only had to contend with “psychiatrists†only interested in your money, but also some people around you who look down upon your sick relative’s behavior instead of understanding.
During the time my sister was still having her crazy bouts, my family and I attended a party full of rich socialites. Pardon my bitterness, but that was when I realized that there really are people who look down upon the mentally ill. My sister was a bit calm at that time, but she got excited when she saw a cake. She wasn’t in her right mind, so instead of getting just a plate of cake for her to eat, she tackled the entire cake with her fingers. The hosts of the party were our relatives, my aunt and uncle assured us that it was no big deal—it was just a cake. My cousin put her harm around my sister’s shoulders and carefully led her to the washroom to clean up.
Though there were some guests who were very understanding, and even assured us that it was ok… There were also those who had “DISGUST†written all over their faces. There was even one high-and-mighty guest who had the gall to say out loud, “ugh, who invited her?†My parents and I didn’t know how to react, we were so shocked. Luckily, my uncle stepped in and said, “that’s my niece.†I’m guessing that person never got invited ever again to my uncle’s home 😀
People like that make it hard for families with mentally ill relatives to be upfront with their situation. It’s no wonder that there are those who just lie and say that their relative is overseas instead of saying upfront that he/she has been institutionalized on getting psychiatric help. It takes some time before one becomes unbothered by ostracisms, not because they’re just not, but because such experiences can help strengthen one’s character.
Since our ordeals, my family and I don’t even pity families like ours going through what we gone through. They don’t deserve pity—they deserve admiration.
To my dear friend and her family… If you’re reading this entry, I just want to let you know that you have friends who will support you every step of the way. If you need help, you know our numbers 🙂
hi gail! my friend needs help. the story is quite similar to hers. i hope u could help us. could u pls share us the number of ur sister’s doctor, pls? my friend is losing hope.. thank you very much. more power to you =)
I recently affiliated in a mental institution as a nursing student.. there we experienced that no one needs to be scared if you understand and know what they have gone through.. they are physically adults and even geriatrics but they are kids at heart and mind. They could play and dance and sing well and you don’t have to tell them that they need to do this and that.. They are better than well people who just judge them instead of loving them.. It’s sad that the government do not have enough budget and it is really understaffed. More than the medications, what they need is the love and presence of their families.. it’s sad that they do not even bother to visit them and just abandon them their letting them to rot.. =( it’s the most memorable affiliation i have yet.. Be strong for your sister.. It’s good that she has a family like yours.. she needs all the love she can get
hi Gail!your situation really made me ashamed of myself. i happen to have a sister who has signs of getting into mental disorder due to i guess, too much depressions she had been through with her married life… to make the story short, she is now into constant quarrels with us (her siblings)and she oftentimes into trouble with our neighborhood too. the sad thing is, we, as her immediate relatives- her sisters (our parents were already gone)have a hard time coping and understanding her situation whenever she had an attack and especially whenever she shows other people of her situation outside the house. sad to say too that we feel ashamed whenever she goes out of the house and trying to make us feel shameful of the silly things she does the same things like a person with mental disorder does…(no offense meant).
but after reading your blog, i feel ashamed and sorry for myself for not doing the right thing on the very first sign to help her overcome the situation she’s into right now. I pray that God may forgive me and my family for this. i hope and pray that it’s not yet too late to make things right. thank you coz u enlighten me. God bless you and your family too.
Hi I am a post graduate student taking up Master of Ats In Nursing Major in psychiatry. Presently I am working with my thesis helping family members of mentally ill patient as the primary purpose . I don’t have any family members who is mentally ill but as a nurse I observed what is happening in our society . I am looking for a parents who is willing to participate in my study just by answering a few questions and willing to attend to a free seminar that we are going to give . For protection the names of the Parents will be keep confidential .Those who are willing to participate just email me and give your address and telephone number and i will personally see you .
hi ms. madonna, i’m willing to participate… what is your email add pls? thanks
Hello there! While reading your blog i couldn’t help but cry. Thank you for sharing your story, you’re very brave and compassionate. God bless you more!
I have been looking for help, together with my husband, for my brother in law who has been mentally ill for years now. He used to be okay, with an IQ of a Genius in fact, but he got out of hand when my husband and i got married 18 years ago. They are only 2 in the family and losing his brother aka my husband (at least in his understanding of marriage) became a big blow to his security. My parents in law were basically based in Indonesia for a long time so since High School, both of them had been left to fend for themselves + a maid + material provisions. My father in law has now since retired ever since my mom in law passed away 2 years ago. We need a good doctor for my brother in law. We need him to be better. Lately, he has become a bit dangerous and violent. Is there hope for him? Please anyone, help us… please…
@Bing – There’s always hope 🙂 I’ve forgotten the full name of my sister’s doctor (my dad is the one in contact with her), but as far as I can remember, she has a clinic in Medical City Ortigas. They have a pretty good psych facility there, and know how to handle violent cases (my sister was violent already when we first admitted her to Medical City).
ako meron niyan.
pero ito nakakapag work parin at ang maganda pa ako pa ang breadwinner ng family ko at until now im still on medication, sa st lukes thefort ako nagpapatingin ngayon under kay dr monina garduno cruz magaling na doctor yun.
Ako meron din ako nyan. Based on experience sa mental illness na schizophrenia, nuon akala ko kung ako lang ang nakakaranas ng mga auditory and sometimes visual hallucinations at heightened feelings and emotions d2 sa mundo at halos mawala na ako sa reality kaya ako ay naconfine pero nung tumagal ng konti ako ay gumagaling na dahil sa mga medications na binibigay. Hangang sa nakakabasa ako ng matino at binasa ko ang tungkol sa sakit ko sa isang pamphplet sa ospital. Nalaman ko na d lang pala ako ang may ganun na symptoms at lahat ng sinasabi sa binasa ko ay totoo. Kaya parang lumakas ang loob ko na normal lang pala itong nangyayari sa akin hangang sa akoy nagtatake ng meds continuously at gumagaling. Now, it’s almost 2-3 yrs na akong magaling mula sa maconfine sa hospital. It’s also because of the frequent visits, love and care of my family members. Thanks nga pala sa internet dahil nalaman ko ung isa pang sakit ko na d nalaman ng mga psychiatrist at ako dahil ang alam ko lang schizophrenia ang sakit ko pero nung binasa ko ung mga sintomas sa internet ay meron pala akong panic attack. Sometimes its better to have own research also sa sariling nararamdaman. So ang sakit ko ay schizophrenia at panic attack. Nagtatake pa rin ako ng meds at ang theory ko sa mga may mental illness na katulad ko, nung 1st ay ang alam lang namin ay nangyayari lang ang mga sintomas sa amin at nawawala kami sa reality kaya dapat ipaalam sa kanila na di lang sa kanila nangyayari ang mga sintomas na ito at ito ay nangyayari rin sa maraming tao. Kausapin o ipabasa sa kanila ang tungkol sa sakit nila at ipaalam ito sa kanila at kumbinsihin na may sakit sila kaya sila nagkakaganun. May tulong din ang medications at payo ng doctor. At tandaan kung hindi alam ng doctor ang sintomas na nararamdaman mo, d nila malalaman ang iyong sakit at kung d mo madescribe o alam ang nangyayaring sintomas sa u, d mo ito masasabi sa doctor. Sa mga d nakakapagsalita na patients, importanteng maobserbahan sila ng mga family members nila para masabi ang sintomas katulad ng nangyari sa akin kasi minsan d nakikita sa pisikal ang mga sintomas e. Ngaun nakahanap din ako ng trabaho d2 sa internet at nakakatulong naman sa pamilya ko ng konti. At sana katulad ni kuya albert makakahanap din ako ng asawa ko na naiintindihan ako, supported at accepted hehe joke. Meron nga ba pala kaung alam na organization o company na tumutulong sa mga kagaya kong may mental condition d2 sa Pilipinas o international? Sana meron mga programa din sa mga may mental condition d2 sa pilipinas gaya sa ibang bansa tulad ng America at Europe. Kung may message kau sa akin email me sa jerome2399@yahoo.com.
Hangang d2 na lang po ako chat to u next time.